Karmilya Lovett has good cause to want to leap from a plane this morning.JENNA BISHOP May 31, 2014 4:21am
Taking to sky: Karmilya Lovett will complete a skydive challenge to raise awareness for cystic fibrosis, which her daughter Laporsha-Storm Lovett-McGee, 15 months, has.
She decided to skydive at Nagambie from 4570
Her daughter Laporsha-Storm Lovett-McGee was diagnosed with cystic fibrosis just weeks after she was born.
Ms Lovett said she was extremely nervous and slightly terrified of the jump.
‘‘It’s pretty scary, but it’s all for a good cause,’’ she said.
Ms Lovett said one of the hardest things about receiving the cystic fibrosis diagnosis was the lack of information and awareness about the condition.
‘‘To be told a diagnosis without knowing any information about it was so scary,’’ she said.
There are more than 3000 people living with cystic fibrosis in Australia, with one in every 2500 babies born with the condition.
Cystic fibrosis causes normal mucus in the lungs to change into a thick sticky substance, blocking tiny air passages and trapping bacteria.
Repeated infections can cause irreversible lung damage and ultimately death, with an average life expectancy of 37, although many live much longer.
Ms Lovett said friends and family had rallied around the cause, with David McGee, Cindy McGee, Shane Greenwood, Lisa Greenwood and Andrew Storie also skydiving.
Dean McDonald will also complete the dive for his daughter who also has cystic fibrosis.
Laporsha-Storm’s siblings and friends will also watch Ms Lovett complete the dive.
Quality Teams has donated T-shirts for the dive, Nagambie Skydive has offered a discounted dive so more money can be donated to Cystic Fibrosis Australia and business have donated prizes to be raffled.
Ms Lovett said Laporsha-Storm, 15 months, was thriving.
‘‘She’s doing really well. We only have to go to Melbourne every couple of months and she’s taking a pancreatic enzyme to help her digest fats,’’ she said.
Laporsha-Storm also has daily physical therapy sessions to help her get mucus off her chest and is taking preventative antibiotics and specially formulated electrolyte salts.
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