Tongala's Kristy McGrath plans to cycle from Stanhope to Noosa to help her god-daughter.April 9, 2014 3:58am
Kristy McGrath will ride 1728 km to Noosa in September to raise money to help her one-year-old god-daughter Ellie Topliff who has a rare genetic disorder.
Tongala resident Kristy McGrath is preparing to take on a 1728
She plans to ride from Stanhope to Noosa in Queensland in two weeks in October.
Kristy is aiming to raise money to help her god-daughter Ellie Topliff, 14 months, who has a rare genetic disorder called Tay-Sachs Disease.
Infants with Tay-Sachs often develop as normal during the first few months of their lives before a fatty substance known as Ganglioside GM2 builds up in their nerve cells and tissues in their brain.
Ellie was born on February 7 last year and the first inkling her parents Catherine and Joel had that something was wrong was when she stopped reaching the regular milestones a baby usually achieves and then started losing abilities she previously had.
In cases of Tay-Sachs, both parents carry a specific gene that results in a 25 per cent chance of their children developing the disease.
It causes a process of deterioration affecting the child’s mental and physical abilities and children with the disease can become deaf, blind, suffer seizures and lose the ability to swallow.
‘‘We believe Ellie’s is the only case of Tay-Sachs Disease in Australia at the moment,’’ Kristy said.
‘‘It is more common in the United States, particularly in people of certain jewish descent.
‘‘Ellie is the same age as my youngest son and I just thought I’d like to try to raise some money to help her.’’
Kristy has named her fundraiser the ‘Ride for Ellie’s Smile’ that links with a video on YouTube called ‘Ellie’s Smile’ that tells her story.
Relay For Life participants took to Shepparton's Princess Park at the weekend to raise funds for the fight against cancer, support those battling the disease and remember those who have lost their fight.
Fine weather and a strong number of athlete registrations will ensure this weekend’s Yarrawonga Mulwala Multisport Festival is another huge success.
The fifth annual King Billy Retreat Open Garden Party will be held at Rushworth on Saturday and Sunday, October 25-26, from 10 am to 4 pm.
To celebrate National Children’s Week Campaspe shire is hosting an activities day at Apex Park tomorrow with groups providing interesting activities for babies through to kinder aged children.
Maribeth, Angelica, Faye and Reynaldo Dipasupil have become Australian citizens at a ceremony in Echuca recently.
KCLC supported Southern Processing win award
Members celebrate over the weekend.
Berrigan Shire was this week approved for a low interest loan from the state government to undertake flood mitigation works.
Frank Hill is thrilled with his repaired 1948 grey Fergie.
A part of motorsport history comes to Cobram, with local business performing a full restoration of Jack Brabham’s championship F2 BT18.
Sunny skies for Deniliquin Caulfield Cup Day race meet.
NSW has announced an increase in water allocations for Murray and Murrumbidgee irrigators.
Lions Benalla donates $1200 to buy a bar code reader for Lorraine Billman who will soon be able to go shopping without her husband.
Discover unbelievable local deals from local businesses every week in the Goulburn and Murray Valley area with Leapon.com.au!
Search properties for sale or rent across North Central Victoria and Southern NSW. Visit your local website for local homes....
Search for published and unpublished photos from McPherson Media Group newspapers and magazines. All our photos are available to purchase.
Place an advertisement in any one of McPherson Media Group's local newspapers.