Tongala's Kristy McGrath plans to cycle from Stanhope to Noosa to help her god-daughter.April 9, 2014 3:58am
Kristy McGrath will ride 1728 km to Noosa in September to raise money to help her one-year-old god-daughter Ellie Topliff who has a rare genetic disorder.
Tongala resident Kristy McGrath is preparing to take on a 1728
She plans to ride from Stanhope to Noosa in Queensland in two weeks in October.
Kristy is aiming to raise money to help her god-daughter Ellie Topliff, 14 months, who has a rare genetic disorder called Tay-Sachs Disease.
Infants with Tay-Sachs often develop as normal during the first few months of their lives before a fatty substance known as Ganglioside GM2 builds up in their nerve cells and tissues in their brain.
Ellie was born on February 7 last year and the first inkling her parents Catherine and Joel had that something was wrong was when she stopped reaching the regular milestones a baby usually achieves and then started losing abilities she previously had.
In cases of Tay-Sachs, both parents carry a specific gene that results in a 25 per cent chance of their children developing the disease.
It causes a process of deterioration affecting the child’s mental and physical abilities and children with the disease can become deaf, blind, suffer seizures and lose the ability to swallow.
‘‘We believe Ellie’s is the only case of Tay-Sachs Disease in Australia at the moment,’’ Kristy said.
‘‘It is more common in the United States, particularly in people of certain jewish descent.
‘‘Ellie is the same age as my youngest son and I just thought I’d like to try to raise some money to help her.’’
Kristy has named her fundraiser the ‘Ride for Ellie’s Smile’ that links with a video on YouTube called ‘Ellie’s Smile’ that tells her story.
One person is dead after a collision between a car and a truck on the Murray Valley Highway and Waaia Bearii Rd. Traffic is being diverted around the scene.
The first preliminary final on Saturday saw the Tungamah seniors start their campaign against Waaia at the Rennie Recreation Reserve.
The Aboriginal and wider community is mourning the death of revered Bangerang Aboriginal elder, Uncle John ‘‘Sandy’’ Atkinson.
CLAIRE Murphy came home the other day.
BE LIKE Barry — the video by Campaspe Shire to educate children about recycling — was launched at St Mary’s Primary School on Monday.
WYUNA’s Memorial Hall was filled with over 80 people for the recent launch of the Wyuna History Group’s third book by Wyuna History Group researcher Noel Thompson – Wyuna Honour Roll 1914-1918.
Avenel win over Nagambie to take top spot
Berrigan Shire councillor Daryll Morris says he has been sickened by some of the vitriol and personal attacks to surface since the council’s proposal to redevelop Finley’s Memorial Hall and School of Arts site was revealed in October last year.
WINE is meant to be enjoyed with good food and good friends.
The preparations for the 10th Cobram Swap Meet have been given a boost with a brand new line marker. The Rotary Club of Cobram, which organise the swap meet, applied for a volunteer grant from the Federal Government, from which it received $4600.
Deni’s Debutante Ball gurus Vicki Ackers and Deb O’Connor love working with youth.
Tuesday, August 16
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