About 450 people set off from Moama, walking across the bridge to Echuca for the second annual Tough Tilly Day.RHIANNON HORRELL January 6, 2014 9:11am
A crowd of 450 people donned singlets and crossed the Echuca-Moama bridge on Saturday for a special cause.
It was the second annual Tough Tilly Day and families and supporters made their way to the American Hotel after leaving Moama’s Border Inn, where celebrations and fundraising continued.
The day was inspired by one little girl — Tilly Wilkes — whose determined spirit is making a difference to people across Australia.
Tilly suffers from EB or Epidermolysis Bullosa.
It is a rare skin condition found in about 1300 people across the country and it means a person’s skin can blister and peel at the slightest touch.
Her father, Corey Wilkes, said the support had been phenomenal and organisers Rory Brockwell and Ricky Robertson had done an outstanding job.
Fundraising tallies were still being counted at the weekend, but the family and organisers were hoping to raise $100,000 for support group DEBRA.
‘‘One day (Tilly) will wake up and she’ll think she’s very lucky,’’ Mr Wilkes said.
‘‘She’s touched so many lives and helped people all over Australia.’’
Tilly’s mother Kelly said the support had been overwhelming.
She said the weather also proved helpful because last year participants sweltered through a 45°C day.
Supporter David McArthur described the warmth of the Wilkes family.
‘‘For (Tilly) to come along the way she is
‘‘It’s a beautiful cause to be involved with.
‘‘The family has so much love and their arms are open wide.’’
DEBRA family support program co-odinator Simone Baird also attended and spoke to the Riv about her daughter, Eliza, 14, who also suffers EB.
‘‘There’s four different types of EB and (Eliza) has the most severe form,’’ she said.
‘‘It means there’s large open areas of skin. There’s lots of pain associated with it.’’
Ms Baird said getting out of bed in the morning was the hardest part for Eliza, because it often meant dressing changes and pulling on clothes, which she said was a time-consuming and painful process.
‘‘We have a good support group but some days can be tough. Every day brings a different challenge,’’ she said.
‘‘Her skin is so fragile and it can tear. It’s really limiting to a normal life.’’
Ms Baird said part of her role was spreading the word about EB as much as possible.
Shepparton police pursued two youths on foot near Waters Rd this afternoon.
The Mulwala Lions took a huge step forward in the race for the Murray League title with a hard fought, low scoring, 15 point win, against the fancied Barooga outfit, in near perfect conditions at Lonsdale Reserve on Saturday.
Chelsea Campbell is excited with her new business venture, after purchasing Carol Taylor’s hairdressing salon in Hogan St.
THE Echuca-Moama Country Music Festival will kick off next week at Moama RSL with three days of entertainment under the one roof.
NATIONAL tree day came early for Rochester Secondary College with 16 students planting 350 trees in little more than an hour on Thursday.
Goulburn Valley Water, in consultation with the Department of Health & Human Services, has lifted the Boil Water Notice for the township of Tongala.
Australian Army Cadets unit keeps winning awards.
Finley's well-respected Gordon Pyle will be remembered by the Southern Riverina community
HEATHCOTE Park Raceway was back in action on Sunday with a surprise for those expecting owner Russell Clarke to be enjoying his retirement.
Dozens of birds of all shapes and sizes flew the coop as Cobram hosted its inaugural poultry auction last Sunday.
Neil Buckley has been inducted as president of the Deniliquin Lions for the next 12 months.
Superior Seed Co ran a successful Winter Cropping Field Day at Deniliquin last week.
The Benalla Giants came out winners in both the under-14s and under-16s against the Benalla Bulldogs on the weekend.
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