About 450 people set off from Moama, walking across the bridge to Echuca for the second annual Tough Tilly Day.RHIANNON HORRELL January 6, 2014 9:11am
A crowd of 450 people donned singlets and crossed the Echuca-Moama bridge on Saturday for a special cause.
It was the second annual Tough Tilly Day and families and supporters made their way to the American Hotel after leaving Moama’s Border Inn, where celebrations and fundraising continued.
The day was inspired by one little girl — Tilly Wilkes — whose determined spirit is making a difference to people across Australia.
Tilly suffers from EB or Epidermolysis Bullosa.
It is a rare skin condition found in about 1300 people across the country and it means a person’s skin can blister and peel at the slightest touch.
Her father, Corey Wilkes, said the support had been phenomenal and organisers Rory Brockwell and Ricky Robertson had done an outstanding job.
Fundraising tallies were still being counted at the weekend, but the family and organisers were hoping to raise $100,000 for support group DEBRA.
‘‘One day (Tilly) will wake up and she’ll think she’s very lucky,’’ Mr Wilkes said.
‘‘She’s touched so many lives and helped people all over Australia.’’
Tilly’s mother Kelly said the support had been overwhelming.
She said the weather also proved helpful because last year participants sweltered through a 45°C day.
Supporter David McArthur described the warmth of the Wilkes family.
‘‘For (Tilly) to come along the way she is
‘‘It’s a beautiful cause to be involved with.
‘‘The family has so much love and their arms are open wide.’’
DEBRA family support program co-odinator Simone Baird also attended and spoke to the Riv about her daughter, Eliza, 14, who also suffers EB.
‘‘There’s four different types of EB and (Eliza) has the most severe form,’’ she said.
‘‘It means there’s large open areas of skin. There’s lots of pain associated with it.’’
Ms Baird said getting out of bed in the morning was the hardest part for Eliza, because it often meant dressing changes and pulling on clothes, which she said was a time-consuming and painful process.
‘‘We have a good support group but some days can be tough. Every day brings a different challenge,’’ she said.
‘‘Her skin is so fragile and it can tear. It’s really limiting to a normal life.’’
Ms Baird said part of her role was spreading the word about EB as much as possible.
The Bureau of Meteorology has released a severe weather warning for regions that include Shepparton. It includes damaging winds and the potential for flash flooding.
Pete O’Neill and Abby Hicks are national champions at the completion of the 2015 Australian Barefoot Championships held last week.
GVAC women Rachel Pratt and Jacquie Fitzpatrick showed the men, and the large crowd at Rushworth Speedway on Saturday, March 28, they have what it takes when competing in the men’s classes.
Two international backpackers have taken aim at contractors who hired them to pick fruit in the region without payment.
Rochester boxing coach Chris Trewin and his team of dedicated trainers have been hitting the bag for more than six months and the results are beginning to show.
Local MP calls for community applications
A special event will take place at Pioneer Park on Sunday.
Jerilderie's born and bred Madeleine Harris has been recognised for her banking and finance career
Concerned Costerfield residents had the chance to voice their antimony health concerns last week after an independent facilitator was appointed.
Strathmerton clinched a win in the high-scoring game against Mathoura on the weekend in the PDFL North West competition.
Deniliquin swimming dynamo Stephen Dalzell has finished 13th overall in his preferred event at the Australian Age Championships.
Murray Goulburn Co-operative has set a date for a special meeting to vote on a new capital structure.
Emergency services are on scene of a two-car crash on the Midland Hwy, near Benalla. Two people have died. Traffic is being diverted.
Discover unbelievable local deals from local businesses every week in the Goulburn and Murray Valley area with Leapon.com.au!
Search properties for sale or rent across North Central Victoria and Southern NSW. Visit your local website for local homes....
Search for published and unpublished photos from McPherson Media Group newspapers and magazines. All our photos are available to purchase.
Place an advertisement in any one of McPherson Media Group's local newspapers.