A community event will be held next Wednesday to recognise Haemochromatosis Awareness Week.MONIQUE FREER August 13, 2014 3:25am
Haemochromatosis sufferer Judi McDonald and Benalla Health community health nurse Deborah Smith are part of a team hosting an event for Haemochromatosis Awareness Week.
Judi McDonald never thought that a genetic disorder would land her a starring role in a movie.
The Benalla resident suffers from haemochromatosis, or inherited iron overload disorder, which causes the body to absorb excess iron.
Fellow haemochromatosis sufferer and famous film director Paul Cox was recently inspired to make a short film about the disease and the work of Haemochromatosis Australia, and asked Ms McDonald to feature in it.
‘‘Haemochromatosis has many different symptoms and we’re each doing one symptom in the film,’’ she said.
‘‘I’m doing the stomach pain variety.’’
This week is Haemochromatosis Awareness Week and a community information session will be held next Wednesday to mark the occasion.
Along with a screening of Mr Fox’s film, Haemochromatosis Australia president Ben Marris and Ms McDonald will speak about their experiences.
In 2006 when Ms McDonald was at her uncle’s 80th birthday celebration, she purchased a family history book from a long-lost cousin and, in the first few pages there was some information about a genetic family disease called haemochromatosis.
It was not until she came across the information that Ms McDonald went back to the doctor armed with her own self-diagnosis, and tests revealed she had the disorder.
The build-up of iron in sufferers affects the organs and joints and eventually can become toxic.
Early symptoms include joint pains, fatigue, weakness and sexual dysfunction and if left untreated it can cause potentially fatal symptoms such as diabetes, liver cancer and cirrhosis, heart failure and osteoarthritis.
Although one in 200 people are genetically predisposed to haemochromatosis, Ms McDonald said it was not well known.
Ms McDonald experiences joint aches and pains and extreme fatigue, however she has learnt to manage the disorder and is now an advocate for Haemochromatosis Australia.
‘‘My aim is try and inform as many people as possible about haemochromatosis; if left untreated you may end up on the organ donor list,’’ she said.
‘‘Check your family tree; if you have relations from England, Ireland or Scotland and have unexplained joint pain or chronic fatigue, think about it and get tested.’’
For more information or to RSVP phone Haemochromatosis Australia on 1300
Brooklyn Andresen has had a time he won't forget in a hurry after collecting five gold and one silver medal at the Australian Junior Outrigger Titles and Trans Tasman Series.
The Yarrawonga Pigeons A grade netball team has fallen agonisingly short of winning the 2015 Ovens and Murray Premiership against Wodonga after staging a great final quarter fightback.
There is a new police sergeant in Mooroopna and his name is Gerard Warrin.
RESIDENTS are being asked to get behind McHappy Day next week, which hopes to raise more than $3.4 million for Ronald McDonald House Charities.
ROCHESTER Historical and Pioneer Society boasts one of the finest local history museums in country Victoria.
Bombers prepare for GVFL Grand Final
Hundreds flock to Avenel to learn a thing or three.
Tocumwal Lions Club has plans to purchase the Bowling Club site for an aged care facility, which will only happen if the merger between the Tocumwal bowls and golf clubs proceeds.
A NASTY run-in with a kangaroo on the Northern Hwy between Melbourne and Echuca has convinced one regular traveller on the road the question of a cull needs to be addressed.
Three Cobram teens have been arrested by police after they allegedly stole tractors from Cobram and Tocumwal and caused about $30 000 in damage.
Whether you fancy a flutter on the Caulfield Cup or the local cup, the Deniliquin racecourse is the place to be on Saturday, October 17.
An exercise treadmill has inspired Riverina sheep producer Pat Daniher to invent an easy solution to feeding-out fodder off the back of a ute.
The News magazines are online - read high quality magazines in your time. Check in regularly for the latest editions.
Riverine Herald's well regarded locally produced magazines. They're now online, so you can read them whenever and wherever you like.
Search for published and unpublished photos from McPherson Media Group newspapers and magazines. All our photos are available to purchase.
Place an advertisement in any one of McPherson Media Group's local newspapers.